Conference videos and slide decks will be available soon!

Conference Videos


Meeting Information

The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) is excited to announce its first-ever Aicardi-Goutières Syndrome Family Conference.

The event will feature a lecture series and small group sessions hosted by some of the world’s leading scientific and clinical experts in the field. We will present the most recent advances in research and preview how these might be applied to the development of future clinical trials and therapies. Our clinicians and therapists will also introduce general guidelines that families will be able to discuss further with their local medical providers.

The goal of this event is to bring together patients, parents, families, clinicians and researchers in an environment where information and ideas can be exchanged freely. We have planned a fun-filled afternoon for our younger (and older) guests, and we would be thrilled if you would join us!