Scientific Meeting Summary

The 2019 Global Leukodystrophy Initiative Conference brought together clinical investigators, basic science researchers, patient advocacy leaders and industry representatives from around the world for three days of engaging presentations and sessions focused on clinical development and interdisciplinary partnerships across the leukodystrophies.

Through carefully curated sessions and insightful discussions, conference attendees were able to identify and prioritize research opportunities in this select group of disorders with significant clinical development potential.

Thank you for your support!


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Omar Sherbini, MPH
Program Manager
Global Leukodystrophy Initiative

Presentation Recordings
Scientific Meeting Day I

Session I - Alexander Disease

Session II - Adrenoleukodystrophy (ALD)

Session III - Adrenomyeloneuropathy (AMN)

Session IV - Pelizaeus-Merzbacher Disease (PMD)

Session V - Pol III-related Leukodystrophy (4H)

Scientific Meeting Day II

Session I - Aicardi-Goutières Syndrome (AGS)

Session II - Canavan Disease

Session III - Vanishing White Matter Disease

Session IV - Krabbe Disease

Session V - Metachromatic Leukodystrophy (MLD)

Presenter Slide Decks

The meeting organizers would welcome the opportunity to share select slide decks upon request, provided the presenter has given us permission to do so. You may use the ‘Contact Us’ form to submit a request.