With a growing network of clinical centers around the world, our goal is to bring the highest standard of specialized care for white matter disorders to your doorstep.


Clinical Centers in Australia



The Royal Children's Hospital Melbourne

50 Flemington Rd
Parkville VIC 3052
+61 3 9345 5522

"The Royal Children's Hospital (RCH) has been providing outstanding care for Victoria's children and their families for over 140 years. We are the major specialist paediatric hospital in Victoria and our care extends to children from Tasmania, southern New South Wales and other states around Australia and overseas. With a passionate, highly skilled and committed staff campus wide of close to 4,000, we provide a full range of clinical services, tertiary care and health promotion and prevention programs for children and young people.

The RCH has always held a special place in the hearts of all Victorians and in 2010, as testament to our leadership and advocacy role, the RCH was awarded the prestigious Committee for Melbourne 2010 Melbourne Achiever Award, for outstanding contributions to the Melbourne community.  Our volunteers were awarded both individual and team awards at this year's Minister for Health Volunteer Awards and the team that successfully separated conjoined twins Krishna and Trishna was recognised with the prestigious RSL ANZAC of the Year Award.

The new Royal Children's Hospital opened in 2011 right next door to the old site in Parkville, Victoria. It has been purpose built for children and the way we care for them today and into the future. The new hospital campus brings together six levels of clinical, research and education facilities over 200,000 square metres within the 4.1 hectare site. Inspired by the quality of light, the textures and forms of its parkland setting, the new RCH delivers a patient and family focused healing environment based on the latest evidence and research-based design principles."

For more information, click here.


Clinical Centers in Canada



Montreal Children's Hospital | McGill University Health Centre

1001 Boulevard Décarie
Montréal, QC H4A 3J1
(514) 412-4400

"The Montreal Children’s Hospital provides the highest quality healthcare to infants, children and teenagers. Each year tens of thousands of children and families from across Quebec and beyond seek care from our health professionals. We serve our patients in both French and English and we have a dedicated team of medical interpreters who together speak more than 40 languages.

What makes the Children’s extraordinary is our team spirit—a blend of caring, innovation and dedication. We know that a hospital can be a scary place for a child and our internationally recognized ambulatory care service helps minimize a child’s hospital stay as much as possible by providing ongoing care on an outpatient basis. This is just one example of the many ways we put patients and families at the centre of our care.

It is our responsibility to make sure Quebec children have timely access to treatment in a caring environment. We welcome, support and respect each child, teenager and family member who comes through our doors. Parents are our 'partners' in care because, by working together, we can provide every child with the medical attention they deserve. Our goal is not only to provide groundbreaking care but also to develop and recommend measures that will help prevent illness and injury before they happen."

For more information, click here.


Clinical Centers in Italy



Istituto Neurologico Carlo Besta

Via Celoria 11
20133 Milano
+39 02.23941

"The Foundation of the Carlo Besta Neurological Institute, is, under Italian Civil Law, a “Foundation of Participation,” in which representatives within the Board of Governors play a prominent role. Members of the Board of Governors include representatives of the Italian Ministry of Health, the Region of Lombardy, and the Municipality of Milan − all of which are Founders of the Besta Foundation.
The organs of the Besta Foundation are the President, the Board of Governors, the General Manager, the Scientific Director, and the Board of Auditors.

The Carlo Besta Neurological Institute, first established in 1918, was designated by the Italian government as an Institute of Research and Treatment (IRCCS) in 1981. On July 15, 2006 the Institute transformed into the Foundation of the Carlo Besta Neurological Institute, IRCCS, in accordance with Italian Legislative Decree No. 288 of 2003. The activity of the Foundation is governed by its Statute approved by Italian Ministry of Health, April 28, 2006.

The Foundation of the Carlo Besta Neurological Institute, IRCCS, is a regional and national centre of excellence for the treatment of neurological diseases, and also undertakes research aimed to improve the diagnosis and treatment of these diseases. The Foundation treats oncological, degenerative and rare neurological diseases affecting both children and adults, and is highly active in the field of neurosurgery. It is a regional and national referral centre for several specific neurological conditions.

The fundamental aims of the Foundation are to provide high quality, ethical and efficient care and treatment to its patients, making use of the results of it own research and that of others, always putting the interests of patient first. In fulfilment of these aims, the Foundation provides care and treatment to patients, carries out clinical and basic research to improve treatment and diagnosis (translational research), provides professional training and educational programmes (including those for pre and postgraduate university students) and develops new managerial techniques to improve health care provision and research efficiency."

For more information, click here.


Clinical Centers in the Netherlands



VU University Medical Center Amsterdam

De Boelelaan 1117
1081 HV Amsterdam
(020) 44 44444

"VU University Medical Center was founded on 1 January 2001. It was created by the integration of the VU hospital, which opened in 1966, and the Vrije Universiteit Amsterdam's Faculty of Medicine, which was founded in 1950. The history of medical science at VU Amsterdam stretches back to the beginning of the last century. The motto adopted by the VU hospital was 'Medicina Miseriacordiae Ministra' (medicine is the servant of mercy). This motto characterizes the Christian tradition from which the VU hospital sprang. Its priorities are human dignity and respectful treatment.

Involvement, care, and ambition are the core values of VU University Medical Center. Medical ethics play an important part. Recommendations made by the medical ethics committee give care providers guidelines when using a new method of -treatment and new types of care. All scientific research is reviewed in advance by a Medical Ethics Review Committee (MERC).

In addition, VU University Medical Center's procedures are characterized by an ambition to make care as good and as efficient as possible. The aim of the interdisciplinary approach adopted by VU University Medical Center is to enable consultation, diagnosis, treatment, and results to be conducted and concluded, as far as possible, in a single visit to the outpatients department or clinic.

The Client Advisory Board for University Hospitals (CRAZ) monitors and promotes the quality aspects of care given to patients, and represents the common interests of patients in the UMCs. In addition, VU University Medical Center regularly has its policy assessed by the Amsterdam branch of the Federation of Patients and Consumer Organizations in The Netherlands. Patients are being involved in the early stages of several care-innovation initiatives at VU University Medical Center so that they can participate in shaping the way care is organized."

For more information, click here.


Clinical Centers in the United States


California (CA)


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Lucile Packard Children's Hospital Stanford

725 Welch Road
Palo Alto, CA 94304
(650) 497-8000

"Opened in 1991, the Lucile Packard Children's Hospital Stanford is the heart and soul of Stanford Children’s Health. Nationally ranked and internationally recognized, our 311-bed hospital is devoted entirely to pediatrics and obstetrics. Our six centers of excellence provide comprehensive services and deep expertise in key obstetric and pediatric areas: brain & behavior, cancer, heart, pregnancy & newborn, pulmonary and transplant. We also provide an additional, wide range of services for babies, kids and pregnant moms.

We provide extraordinary care today. Our new expanded hospital will allow us to be even better. We’re building the country’s most technologically advanced, family-friendly and environmentally sustainable hospital for children and pregnant moms, to open in Summer 2017.

Patients of all ages who receive care at Lucile Packard Children’s Hospital Stanford or Stanford Hospital & Clinics benefit greatly from the close proximity to Stanford University which fosters multidisciplinary research, family-centered-care and groundbreaking innovation."

For more information, click here.


Colorado (CO)


Children's Hospital of Colorado

13123 East 16th Ave.
Aurora, CO, 80045
(202) 476-5000

"When it was founded in 1908 in Denver, Children's Hospital Colorado set out to be a leader in providing the best healthcare outcomes for children. That calling has consistently made us one of the top 10 children's hospitals in the nation and a place parents across the Rocky Mountain region have come to trust. Read more about our top ranking by U.S. News & World Report and other awards.

Our modern-day mission is to improve the health of children through the provision of high-quality coordinated programs of patient care, education, research and advocacy.

In addition to providing the best possible care for kids who need it, we also work hard to keep kids out of the hospital. Through medical research and advocacy efforts, we are working towards a world where kids are safer and healthier and will one day have less need for a hospital.

As a private, not-for-profit pediatric healthcare network, Children's Hospital Colorado is 100% dedicated to caring for kids at all ages and stages of growth. We have more than 3,000 pediatric specialists and more than 5,000 full-time employees helping to carry out our mission.

We provide comprehensive pediatric care at our hospital on the Anschutz Medical Campus in Aurora and at several locations throughout the region.

No matter which location you visit, you'll receive the best possible care for your kids with our specially trained staff and facilities designed just for kids. Unlike other hospitals and urgent care locations, we partner with your child's pediatrician or your family doctor to make sure you receive integrated care.

For more information, click here.


District of Columbia (DC)


Children's National Health System

111 Michigan Ave. NW
Washington, D.C. 20010
(202) 476-5000

"Children’s National Health System, based in Washington, DC, has been serving the nation’s children since 1870. Children’s National is Magnet® designated, and was ranked among the top 10 pediatric hospitals by U.S. News & World Report 2015-16. Home to the Children’s Research Institute and the Sheikh Zayed Institute for Pediatric Surgical Innovation, Children’s National is one of the nation’s top NIH-funded pediatric institutions. With a community-based pediatric network, seven regional outpatient centers, an ambulatory surgery center, two emergency rooms, an acute care hospital, and collaborations throughout the region, Children’s National is recognized for its expertise and innovation in pediatric care and as an advocate for all children.

As the only health system designed for kids in the Washington, DC, metropolitan area, we believe every child should be cared for by professionals who have devoted their career to children’s medicine. At Children’s National Health System, we are dedicated to providing the best pediatric care for our patients, families, and community. We are the premier provider of pediatric care in the region and the only freestanding children’s hospital between Philadelphia and Atlanta.

Serving the nation’s children for more than 140 years, we are a proven leader in the development and application of innovative new treatments for childhood illness and injury. Our internationally recognized team of pediatric healthcare professionals treats more than 300,000 patients each year who come from throughout the region, nation and world."

For more information, click here.

 


Illinois (IL)


Ann & Robert H. Lurie Children's Hospital of Chicago

225 E. Chicago Ave.
Chicago, IL 60611
(312) 227-4000

"Ann & Robert H. Lurie Children’s Hospital of Chicago, formerly Children’s Memorial Hospital, provides superior pediatric care in a setting that offers the latest benefits and innovations in medical technology, research and family-friendly design.

As the largest pediatric provider in the region with a 130-year legacy of excellence, kids and their families are at the center of all we do. Learn more about our family-centered approach to care.

Stanley Manne Children's Research Institute, affiliated with Lurie Children's, is devoted to the understanding, prevention and investigation of pediatric illnesses and injuries. All pediatric research at Lurie Children’s is conducted through the Stanley Manne Children’s Research Institute. It has been designated a Northwestern University Feinberg School of Medicine research center for its central role in the university’s integrated research program. Established in 1986, our pediatric research institute has more than 200 investigators, 500 staff members and 100 trainees who contribute to six growing programs in basic research and translational medicine at the research facility. We also have interdisciplinary centers of excellence that target specific child health issues and complement our core programs. Learn more about our research institute.

Lurie Children’s relies on philanthropic funding to enhance its programs and services for children and families. Founded in 1987, the Ann & Robert H. Lurie Children’s Hospital of Chicago Foundation is a charitable 501(c)(3) tax-exempt organization with fundraising professionals who work with 11 affiliated organizations and an active team of volunteers to cultivate and secure contributions that advance the mission of the hospital."

For more information, click here.


Massachusetts (MA)


Massachusetts General Hospital

55 Fruit Street
Boston, MA 02114
(617) 726-2000

"Since 1811, Massachusetts General Hospital has been committed to delivering standard-setting medical care. Throughout the decades, the hospital has had a consistent commitment to advancing that care through pioneering research and educating future health care professionals.

The third oldest general hospital in the United States and the oldest and largest hospital in New England, Mass General continues its tradition of excellence today. Mass General has consistently placed among the top hospitals on the U.S. News & World Report Best Hospitals Honor Roll since the survey began in 1990. In 2015, Mass General was named #1 in the nation based on our quality of care, patient safety and reputation in 16 clinical specialties.

With more than 300 physicians, 50 medical specialties, 15 surgical services, and compassionate preventive and primary care, we are an invaluable resource for the healthcare needs of infants, children and adolescents. At MassGeneral Hospital for Children (MGHfC) we have the expertise and experience — as well as the state-of-the-art facilities and technologies — to provide exceptional care for our patients.

Our patients have complete access to the resources of the world-renowned Massachusetts General Hospital, including innovative research and treatments. As our patients grow, they also benefit from the smooth transition of care between pediatric and adult services at Mass General."

For more information, click here.


Maryland (MD)


Kennedy Krieger Institute

707 North Broadway
Baltimore, MD 21205
(443) 923-9200

"Kennedy Krieger Institute is an internationally recognized institution dedicated to helping children and young adults with disorders of the brain, spinal cord, and musculoskeletal system to achieve their potential. Caring for more than 20,000 children and young adults annually, we strive to help those with developmental disabilities to thrive at home, in school, and throughout their communities through a wide range of patient care, special education, research, and community programs.

Our scientists dedicate their careers to improving patient care through research, professional training, and education. As leaders in preventing and treating disorders of the brain, spinal cord, and musculoskeletal system, they share their knowledge with the entire community of educators, researchers, therapists, physicians, and other professionals committed to patients with developmental disabilities both at Kennedy Krieger and beyond.

A nationally recognized “Blue Ribbon School of Excellence”, Kennedy Krieger School is a leader in innovative education for children, adolescents and young adults with a wide range of learning, emotional, physical, neurological, and developmental disabilities. We offer a number of school- based, hospital-based, and recreational programs designed to unlock the potential inside each and every student.

The Maryland Center for Developmental Disabilities at Kennedy Krieger Institute is committed to increasing awareness and breaking down barriers in society, allowing all individuals with developmental disabilities to achieve their potential in work, school, and community life. This is accomplished through a wide range of community-oriented programs, projects, and services."

For more information, click here.


Minnesota (MN)


Mayo Clinic

200 First St. SW
Rochester, MN 55905
(507) 284-2511

"Thousands of people come to Mayo Clinic's campus in Minnesota each day for diagnosis and treatment of a medical problem. Many people make their own appointments and some are referred by a doctor. Most people are treated on an outpatient basis, meaning their evaluation, tests and treatments are done in the clinic, and they return to their home or lodging at the end of the day.

Quality at Mayo Clinic involves the totality of a patient's experience, from the first phone call to the last appointment. Mayo Clinic takes pride in the quality health care provided at each of its three clinic locations and in the Mayo Clinic Health System, a network of clinics and hospitals in more than 70 communities in Iowa, Minnesota and Wisconsin. A survey of many different health care quality reports shows one notable result. Mayo Clinic is the only medical center listed at or near the top of every report.

For more than 150 years, Mayo Clinic community outreach activities in Rochester, Minnesota, have made meaningful contributions to improve the quality of life in our communities, nation and world. We do not do this alone. The Mayo Clinic Community Contributions Program partners with members of the community who share our vision of a healthy and vibrant world, offering support to a wide range of organizations.

By collaborating, we work to reduce the burden on individuals and humanity. It is our mission, our responsibility and our privilege to serve."

For more information, click here.


Ohio (OH)


Cleveland Clinic

9500 Euclid Avenue
Cleveland, OH 44195
(216) 444-2200

"The vision of Cleveland Clinic: Striving to be the world's leader in patient experience, clinical outcomes, research and education.

When Cleveland Clinic welcomed its first patients on February 28, 1921, its mission was clearly in place: 'Better care of the sick, investigation into their problems and further education of those who serve.' The doctors who founded Cleveland Clinic, drawing from military medicine, believed in diverse specialists working and thinking as a unit. This kind of cooperation, efficiency and shared vision has fostered excellence in patient care, research and education. These principles endure today at Cleveland Clinic, a nonprofit group practice.

Cleveland Clinic is committed to principles as presented in the United Nations Global Compact, a strategic policy initiative for businesses that are committed to aligning their operations and strategies with universally accepted principles in the areas of human rights, labor, environment and anti-corruption. With than 10,000 corporate participants and other stakeholders from more than 130 countries, it is the world’s largest voluntary corporate citizenship initiative.

In 2008, Cleveland Clinic became the first healthcare provider in the United States to become a signatory to the United Nations Global Compact and the second in the world."

For more information, click here.


Pennsylvania (PA)


Children's Hospital of Philadelphia (CHOP)

3401 Civic Center Blvd
Philadelphia, PA 19104
(215) 590-1000

"The Children's Hospital of Philadelphia (CHOP) is the nation's first hospital devoted exclusively to the care of children. Since our start in 1855, CHOP has been the birthplace for many dramatic firsts in pediatric medicine. The Hospital has fostered medical discoveries and innovations that have improved pediatric healthcare and saved countless children’s lives. Today, families facing complex conditions come to CHOP from all over the world, and our care and innovation has repeatedly earned us a spot on the U.S. News & World Report's Honor Roll of the nation's best children's hospitals.

As a charitable, nonprofit hospital, CHOP depends on philanthropy to advance its mission. Throughout the Hospital’s history, generous families, individuals, companies and foundations have made significant contributions to The Children's Hospital of Philadelphia Foundation.

In its first year, Children's Hospital collected just over $4,000 in donations. When the Hospital moved to its Bainbridge Street location in Center City Philadelphia in 1916, and funding was urgently needed, the community contributed $500,000 in 10 days! Such vivid illustrations of generosity carry on to this day: Last year, the Hospital raised more than $100 million in gifts and pledges.

This support has helped make Children's Hospital a beacon of hope — where research leads to cures and families find the best care for their children."

For more information, click here.

 

Children's Hospital of Pittsburgh of UPMC

4401 Penn Avenue
Pittsburgh, PA 15224
(412) 692-5325

"Renowned for its outstanding clinical services, research programs and medical education, Children’s Hospital of Pittsburgh of UPMC has helped establish the standards of excellence in pediatric care. From Ambulatory Care to Transplantation and Cardiac Care, talented and committed pediatric experts care for infants, children and adolescents who make more than 1,000,000 visits to Children’s, its many neighborhood locations, and Children's Community Pediatrics practices each year. Children's is one of 10 pediatric hospitals in the United States named to U.S. News & World Report's Honor Roll of America’s “Best Children’s Hospitals” for 2014–2015.

Changing lives for the better is what our new hospital campus is all about. Designed with our Children's family – patients, families and staff – in mind, our new hospital inspires positive transformation for all who pass through our doors. For our patients and their families, we promise comfort and a healing touch by offering spacious, private rooms (with overnight accommodation for parents) designed with kids in mind, and one of the largest family resource centers of any pediatric hospital in the world. For our staff, we promise a state-of-the-art facility utilizing breakthrough technology, enhanced research facilities and an intelligent design to maximize efficiency in patient care.

Located in Pittsburgh's Lawrenceville neighborhood, our facility is situated on 10 acres - 1.5 million square feet of usable space. Its design is based on input from physicians, nurses and families – to ensure it meets the unique requirements of pediatric health care providers and the patients they serve."

For more information, click here.


Utah (UT)


University of Utah/Primary Children's Hospital

100 N Mario Capecchi Dr
Salt Lake City, UT 84113
(801) 662-1000

"Primary Children's Hospital is one of the best children's hospital in the western United States. Our 289-bed hospital is equipped and staffed to care for children with complex illness and injury.

Our hospital motto, The Child First and Always® gives us a visible, concise statement of our philosophy. It informs and reassures those who seek our services, and serves as a daily reminder to employees of our commitment to children. This phrase originated from the Hospital for Sick Children in London, England, where it has been used as a motto since the hospital’s beginning in 1852.  

The University of Utah Leukodystrophy Clinic accepts referrals for evaluation, diagnosis, and treatment of inherited leukodystrophies. If families are interested, they can enroll in the Western Leukodystrophy Project, one of the largest longitudinal studies of children with leukodystrophies. Requests for referrals should be initiated by contacting Dr. Bonkowsky directly by email.

Thousands of individual children receive extraordinary care each year at Primary Children’s, provided in an atmosphere of love and concern.

For more information about Primary Children's Hospital, click here."