We are a global consortium of scientists, patient advocates, physicians, and families committed to improving the lives of individuals affected by white matter disorders.


Some of the most groundbreaking scientific research studies, bioregistries, and clinical trials in the field of leukodystrophy are right at your fingertips. And you can be a part of it all. Check out our research directory for a listing of studies that are currently recruiting participants.

Given their combined list of accomplishments and accolades, there can be no doubt that our members represent the world's leading experts in the field of leukodystrophy. Whether you're looking for a specialized clinician, a researcher trying to uncover the underlying cause of a disease, or a patient advocate working to raise awareness - chances are you will find them here.


Our clinicians and researchers work at some of the largest and most well-respected medical and academic institutions in the world. Our job is to help you navigate that network, so that you can easily find the services you're looking for.