2025 GLIA Scientific Meeting and Advocacy Workshop
Philadelphia, PA - The Global Leukodystrophy Initiative (GLIA) is thrilled to host the 2025 GLIA Scientific Meeting and Advocacy Workshop at the Children’s Hospital of Philadelphia. The event is intended to bring together a diverse group of clinical, scientific, advocacy, and industry stakeholders in a forum designed to showcase recent clinical and research advances across leukodystrophies, and identify opportunities for meaningful new interdisciplinary partnerships to address persistent challenges in the diagnosis, care, and treatment of affected individuals.
A live-stream of the scientific meeting will be available on this page starting at 8:00AM EST on Thursday, February 27 and again at 8:00AM EST on Friday, February 28. Video recordings of the scientific meeting sessions will also be made available here in weeks following the conference. Individuals interested in attending virtually are not required to register in advance. Note that the advocacy workshop on Saturday, March 1 will not be broadcast or recorded due to the highly interactive format of the event.
The two-day scientific meeting on Thursday, February 27 and Friday, February 28 serves as an opportunity for leukodystrophy clinicians, researchers, advocacy leaders, regulatory officials, and industry partners from around the world to gather and learn from one another. We are excited to unveil a new format for this iteration of the event, with traditional disease-specific updates anchored by broader concept sessions highlighting current topics in newborn screening, therapeutic development, diversity and access, and advocacy engagement. All sessions will be live-streamed and recorded for those unable to attend the meeting in person.
The advocacy workshop on Saturday, March 1 is reserved primarily for patient advocacy leaders, though industry representatives will be invited to attend select portions of the workshop to foster engagement. With over a dozen new patient advocacy organizations represented since this workshop was last hosted in October 2022, we hope to provide an unbiased forum for constructive discussion between leaders.
If you have any questions regarding the meeting, please contact Omar Sherbini (GLIA-CTN Administrative Director) at email@theglia.org or sherbinio@chop.edu.