2025 GLIA Scientific Meeting and Advocacy Workshop
Philadelphia, PA - The Global Leukodystrophy Initiative (GLIA) was honored to host the 2025 GLIA Scientific Meeting and Advocacy Workshop at the Children’s Hospital of Philadelphia.
The three-day event brought together clinical, scientific, advocacy, and industry stakeholders from around the world to review recent clinical and research advances across the leukodystrophies, and to identify opportunities to address challenges in the diagnosis, care, and treatment of affected individuals.
Thanks to the support of our audiovisual partners at Lafayette Hill Studios, high-quality video recordings of each session are now available for review via the links below. If you have any questions regarding the meeting or are interested in engaging with the Global Leukodystrophy Initaitive (GLIA), please contact Omar Sherbini (GLIA-CTN Administrative Director) at email@theglia.org or sherbinio@chop.edu.
Day 1 - Opening Remarks and Keynote Address


Concept Session I (Newborn Screening)




State of the leukodystrophies Session i





Concept Session II (Therapeutics)





State of the leukodystrophies session II






Day II - GLIA-CTN Collaboration and SUstainability

Concept Session III




State of the Leukodystrophies Session III






State of the Leukodystrophies Session IV





Concept Session IV (Advocacy)





