2025 GLIA Scientific Meeting and Advocacy Workshop


Philadelphia, PA - The Global Leukodystrophy Initiative (GLIA) was honored to host the 2025 GLIA Scientific Meeting and Advocacy Workshop at the Children’s Hospital of Philadelphia.

The three-day event brought together clinical, scientific, advocacy, and industry stakeholders from around the world to review recent clinical and research advances across the leukodystrophies, and to identify opportunities to address challenges in the diagnosis, care, and treatment of affected individuals.

Thanks to the support of our audiovisual partners at Lafayette Hill Studios, high-quality video recordings of each session are now available for review via the links below, along with PDFs of all presentation slides and posters.

Presentation Slides: Click Here
Advocacy + Scientific Posters: Click Here

If you have any questions regarding the meeting or are interested in engaging with the Global Leukodystrophy Initaitive (GLIA), please contact Omar Sherbini (GLIA-CTN Administrative Director) at email@theglia.org or sherbinio@chop.edu.


Day 1 - Opening Remarks and Keynote Address


Concept Session I (Newborn Screening)


State of the leukodystrophies Session i


Concept Session II (Therapeutics)


State of the leukodystrophies session II


Day II - GLIA-CTN Collaboration and SUstainability


Concept Session III (Diversity and Access)


State of the Leukodystrophies Session III


State of the Leukodystrophies Session IV


Concept Session IV (Advocacy)