GLIA-CTN
TRAINING MATERIALS

The Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN) has developed a basic set of guidelines and conventions to standardize data collection, abstraction, and entry across sites and projects, and we invite you to spend some time familiarizing yourself with the training materials and video tutorials on this page.

In addition to including research subjects directly as part of its central study protocol, the GLIA-CTN is working with collaborators worldwide to enroll research participants under local research protocols and contribute redacted data to a central disease-specific database, known as the GLIA-CTN Natural History Project. We invite all collaborators working on this project to review the tutorial videos below for information around entering data into the various forms available.

Please be sure to download and reference the file naming conventions established for the database.

Questions?

If you were unable to locate a specific resource here, please feel free to contact Anjana Sevagamoorthy, MD, MPH (Research Associate) at sevagamooa@chop.edu for support. We are available to assist with all questions.