2026 TUBB4A Virtual Family Conference

Philadelphia, PA - We are excited to share more details about the 2026 TUBB4A Virtual Family Conference scheduled for Saturday, May 23. This event will feature presentation by some of the world’s leading clinicians and scientists for TUBB4A-related leukodystrophy, along with biotechnology and pharmaceutical companies working to develop therapies, and advocacy leaders working to raise awareness and funding for tomorrow’s discoveries. 

The event will begin at 9:00AM Eastern Daylight Time. A detailed agenda will be announced at the start of the event; however, attendees should plan on approximately 3-4 hours of presentations followed by an hour-long discussion session during which presenters will make themselves available to take questions from attendees, who will be able to submit these via chat functionality throughout the event. While there may not be sufficient time to answer all questions, the organizers and presenters will do their best to address as many as possible.

No advance registration is required for this event. The presentations and discussion sessions will be live-streamed right here. We encourage you to bookmark the link to this page in advance. Recordings of all presentations will be posted here in the week following the meeting, so please don’t worry if you cannot attend live or need to step away for a portion of the meeting; you will be able to rewatch the presentations at your leisure. The discussion session will not be recorded to promote more transparent interactions and to protect the privacy of our attendees. 

If you have any questions at all, please feel free to contact Omar Sherbini (sherbinio@chop.edu) and Peter Hong (hongp@chop.edu) for additional information. We hope to see many of you on Saturday, May 23.