2027 GLIA Scientific Meeting and Advocacy Workshop

Philadelphia, PA - The Global Leukodystrophy Initiative is excited to announce the 2027 GLIA Scientific Meeting and Advocacy Workshop, which will take place at the Children’s Hospital of Philadelphia from October 17-19, 2027.

This three-day event seeks to bring together clinical, scientific, advocacy, and industry stakeholders from around the world to review recent clinical and research advances across the leukodystrophies, and identify opportunities to address challenges in the diagnosis, care, and treatment of affected individuals.

REGISTRATION LINK COMING SOON!

The conference will begin with a Patient Advocacy Workshop on Sunday, October 17. This workshop will be reserved primarily for patient advocacy leaders, though industry representatives may be invited to attend select portions of the workshop to foster engagement. With over a dozen new patient advocacy organizations having joined this space in recent years, we hope to provide an unbiased forum for constructive discussion between leaders. In the spirit of promoting a highly interactive format, the workshop will not be live-streamed or recorded.

The two-day scientific meeting will take place on Monday, October 18 and Tuesday, October 19. This meeting serves as an opportunity for leukodystrophy clinicians, researchers, advocacy leaders, regulatory officials, and industry partners from around the world to gather and learn from one another. It will feature disease-specific updates anchored by broader concept sessions highlighting key topics in newborn screening, therapeutic development, diversity and access, and advocacy engagement. All sessions will be live-streamed and recorded for those unable to attend the meeting in person.

A detailed agenda will be released in the coming months. In the meantime, please visit the FAQ section below for more information about what to expect at the 2027 GLIA Scientific Meeting and Advocacy Workshop. We hope to see you there!

  • Yes and yes. The three-day conference will take place in person at the Children’s Hospital of Philadelphia.

    For those unable to join us in person, a livestream of the scientific meeting will be broadcast in real time at https://theglia.org/2027gliaconference. The live stream will begin at 8:00 a.m. EDT on Monday, October 18 and again at 8:00 a.m. EDT on Tuesday, October 19.

    Video recordings of individual presentations will be made available via the same link in the weeks following the conference.

  • Partial travel reimbursement will be offered to meeting organizers, workgroup leaders, and speakers; all other attendees will be responsible for covering travel expenses independently.

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